AND.. he WILL be home SOON!! The "buzz" on the floor is "as soon as Tuesday" (someone said Monday and I almost hyper-ventilated!
Thank you for praying so faithfully for us. We will definitely update when Seth is home (if not sooner
Showing posts with label Norwood. Show all posts
Showing posts with label Norwood. Show all posts
Monday, September 22, 2008
May 11, 2008
Seth continues to do about the same.. but NOW about the same is AMAZING!! Yay, God!! Seth is healing well from his g-tube surgery, the nurses are gradually increasing his feeds to make sure he's still tolerating well.. We're still "nippling" with sterile water (bottle feeding) and Seth is still working on figuring out what to do with stuff in his mouth. Today he took 9ml from me.. not enough to sustain him (about 1/3 of an ounce) but it's good progress.
AND.. he WILL be home SOON!! The "buzz" on the floor is "as soon as Tuesday" (someone said Monday and I almost hyper-ventilated!). We're excited.. and a wee bit nervous.. Sure glad we know who's ultimately in control (and it's not us!)..
Thank you for praying so faithfully for us. We will definitely update when Seth is home (if not sooner).
AND.. he WILL be home SOON!! The "buzz" on the floor is "as soon as Tuesday" (someone said Monday and I almost hyper-ventilated!
Thank you for praying so faithfully for us. We will definitely update when Seth is home (if not sooner
May 9, 2008
Yay, more answered prayers!!
Seth had his g-tube put in on Friday afternoon and came back to his room BREATHING ON HIS OWN!! Woo hoo! (The nurses said it was because we had the BEST anesthiesiologist, I figure that God did it!) He's doing awesome, he spent most of Friday late afternoon, early evening, sleeping in mom & dad's laps.
They weighed him right before I left on Friday night and he's down to 6lbs 3oz (that's for those of you who have been specifically asking). (On a side note: a friend of mine had a baby on Tuesday and while Jack is shorter than Seth, they probably weigh about the same!). Within the next couple of days we can start using the g-tube for food and I"m confident we'll get Seth "bulked up" in NO time!
Thank you for all your prayers, I haven't recieved a date yet but I"m hopeful Seth will be home soon!!
Seth had his g-tube put in on Friday afternoon and came back to his room BREATHING ON HIS OWN!! Woo hoo! (The nurses said it was because we had the BEST anesthiesiologist, I figure that God did it!) He's doing awesome, he spent most of Friday late afternoon, early evening, sleeping in mom & dad's laps.
They weighed him right before I left on Friday night and he's down to 6lbs 3oz (that's for those of you who have been specifically asking). (On a side note: a friend of mine had a baby on Tuesday and while Jack is shorter than Seth, they probably weigh about the same!). Within the next couple of days we can start using the g-tube for food and I"m confident we'll get Seth "bulked up" in NO time!
Thank you for all your prayers, I haven't recieved a date yet but I"m hopeful Seth will be home soon!!
May 8, 2008 - pm
Seth is doing terrific. He's really starting to figure out the swallowing thing (took 8, 7 & 10 mls today over his three sessions, go baby!) but he tires out before he can satisfy his nutritional requirements..
He IS having a g-tube placed tomorrow at noon. This is a relatively simple surgery but will require general anesthesia and the ventilator (we're just a teeny bit nervous about the vent.. but then we rememeber we are not in control! Yay God.) Please pray that he'll do well respiratorilly after surgery.
Other than that, we're about status quo!
He IS having a g-tube placed tomorrow at noon. This is a relatively simple surgery but will require general anesthesia and the ventilator (we're just a teeny bit nervous about the vent.. but then we rememeber we are not in control! Yay God.) Please pray that he'll do well respiratorilly after surgery.
Other than that, we're about status quo!
May 8, 2008 - am
Seth is doing SO well!! The only issue remaining is eating.. We're working on it with Speech & occupational therapists but Seth is only taking millileters at a time (the best he's done so far in one feeding, about a half hour, is 8 ml, he gets 60 mls through his Ng tube every 3 hours). The drs have decided that he probably needs a feeding tube "long term", we'll still working on eating by mouth but his main nutrition will be through the tube. Due to that, Seth is getting a g-tube. This is a feeding tube surgically implanted directly into his stomach (the surgeon described it as a "gas cap" in his belly ). To prepare for that Seth will have an upper GI Study today (Thursday) and most likely the G-tube surgery will be tomorrow..
The surgery will require general anesthesia and so Seth will be placed back on a ventilator but we expect that to be VERY short lived! I"ll send an update tonight when I know what time surgery is tomorrow.
Thank you for your continued prayers for our sweet baby! Oh yeah, moving forward with this g-tube means that Seth will be home SOON! We don't have a date yet but I'm thinking sometime next week!! Yay!! I'll keep you posted.
The surgery will require general anesthesia and so Seth will be placed back on a ventilator but we expect that to be VERY short lived! I"ll send an update tonight when I know what time surgery is tomorrow.
Thank you for your continued prayers for our sweet baby! Oh yeah, moving forward with this g-tube means that Seth will be home SOON! We don't have a date yet but I'm thinking sometime next week!! Yay!! I'll keep you posted.
May 6, 2008
Seth is doing AWESOME!! We are SO grateful for how far God has brought us and for all of you praying for us during this time!
Seth is still in the same room in Peds ICU BUT he's no longer considered an ICU baby! He's only under "cardiac care" which means that the pediatric ICU doctors aren't following him anymore, only the cardiologists! His meds seem to be stable (and are oral so we can bring him home on those) and are controlling the arrhythmia's we had been seeing.
The BIG remaining issue is feeding. He's currently on an Ng tube (tube that runs into his nose, down his throat, into his stomach) he's gradually being transferred over to "bolus feeds" (all at once) instead of the continuous feed he had been on. The GOOD news about that is he has actually woken up cranky and acting hungry when it was time for the next feed! Yay!! Speech therapy and occupational therapy come in to his room and work with him on sucking & swallowing from a bottle. The cardiologist said we'd give it about a week to see if he's going to pick up swallowing or if he'll need to come home with a g-tube (feeding tube directly into his stomach). We are confident that God can take care of this as well! Please keep praying (specifically regarding swallowing).
The boys (Sean & Cary) got to go see Seth on Sunday (Bloomsday) and that was fun too!
Thank you!
Seth is still in the same room in Peds ICU BUT he's no longer considered an ICU baby! He's only under "cardiac care" which means that the pediatric ICU doctors aren't following him anymore, only the cardiologists! His meds seem to be stable (and are oral so we can bring him home on those) and are controlling the arrhythmia's we had been seeing.
The BIG remaining issue is feeding. He's currently on an Ng tube (tube that runs into his nose, down his throat, into his stomach) he's gradually being transferred over to "bolus feeds" (all at once) instead of the continuous feed he had been on. The GOOD news about that is he has actually woken up cranky and acting hungry when it was time for the next feed! Yay!! Speech therapy and occupational therapy come in to his room and work with him on sucking & swallowing from a bottle. The cardiologist said we'd give it about a week to see if he's going to pick up swallowing or if he'll need to come home with a g-tube (feeding tube directly into his stomach). We are confident that God can take care of this as well! Please keep praying (specifically regarding swallowing).
The boys (Sean & Cary) got to go see Seth on Sunday (Bloomsday) and that was fun too!
Thank you!
April 30, 2008
On to Seth! Today was an AWESOME day! When I went up today, Seth was off CPAP and on a nasal cannula. When I went up this evening, Seth was BREATHING ON HIS OWN! God is SO good to us. It's such an amazing sight! His sweet little face just has one teeny tube taped to it into his nose (his Ng -feeding - tube). The heart arrythmias are completely under control with the meds he's on. We tried giving him a bottle (of water, he's getting his nutrition through the Ng tube and IV) tonight, that didn't go so well but it's a start!
We're just SO blessed and thrilled to see how well our baby boy is doing! Thank you SO much for lifting him up in your prayers!!
We're just SO blessed and thrilled to see how well our baby boy is doing! Thank you SO much for lifting him up in your prayers!!
April 29, 2008
Super quick update:
One big change, as of Tues eve, Seth had both chest tubes pulled. Yay!! Other than that, he's more or less the same, still on CPAP for breathing and doing well...
One big change, as of Tues eve, Seth had both chest tubes pulled. Yay!! Other than that, he's more or less the same, still on CPAP for breathing and doing well...
April 27, 2008
I haven't sent out daily updates because the days looked more or less the same.. The drs tweak Seth's meds, fiddle w/feedings, etc.. However, when I got to the hospital on Saturday, Seth was EXTUBATED! (again). He was on CPAP but as of our last report was doing GREAT so Yay!!! God is good and this is just another step forward for Seth! (Oh, and we DID get to hear him crying a little so looks like no vocal cord issues).
Specific prayer requests: For Seth to continue to do well respiratorilly, for feeding to not have "issues".. it would be wonderful to bring Seth home actually nursing (and the drs are skeptical about that and more inclined to think we'll bring him home on a feeding tube)..
God continues to bless us in so many ways, thanks to those of you whom He is using!!
HUGS!
Specific prayer requests: For Seth to continue to do well respiratorilly, for feeding to not have "issues".. it would be wonderful to bring Seth home actually nursing (and the drs are skeptical about that and more inclined to think we'll bring him home on a feeding tube)..
God continues to bless us in so many ways, thanks to those of you whom He is using!!
HUGS!
April 23, 2008
Well, about the time I decide that I"m going to skip a day or two in updates, something happens that I just HAVE to share!
Seth is about the same tonight, still on the ventilator, he now has two chest tubes (one on the right, one on the left) to drain fluid he tends to accumulate in his chest.. He's been placed on antibiotics as a precautionary measure in case he has an infection (every now and then one of his tests will come back funky and they "worry" about infection and then it resolves)..
BUT the REALLY good news, the FINAL genetic test came back. Remember they did "karotyping" and that was 46xy (normal). This was a FISH test which looked specifically at ONE chromosone for a possible genetic disorder and it was NEGATIVE!! As far as the drs can see at this point, Seth is "genetically normal".. (and we had assumed that because he looks so good but it's nice to have it confirmed!).. YAY, God!!!
Okay, on THAT happy note,I"m off to bed!! Tomorrow's another day!
Seth is about the same tonight, still on the ventilator, he now has two chest tubes (one on the right, one on the left) to drain fluid he tends to accumulate in his chest.. He's been placed on antibiotics as a precautionary measure in case he has an infection (every now and then one of his tests will come back funky and they "worry" about infection and then it resolves)..
BUT the REALLY good news, the FINAL genetic test came back. Remember they did "karotyping" and that was 46xy (normal). This was a FISH test which looked specifically at ONE chromosone for a possible genetic disorder and it was NEGATIVE!! As far as the drs can see at this point, Seth is "genetically normal".. (and we had assumed that because he looks so good but it's nice to have it confirmed!).. YAY, God!!!
Okay, on THAT happy note,I"m off to bed!! Tomorrow's another day!
April 22, 2008
I spent some time at the hospital this afternoon, Leland was there this morning.. I called up a bit ago because they were doing a chest xray (Yes, Seth DOES glow in the dark! ) when I left and I wanted to know the results.. Seth NOW has a chest tube on the left side, as well as the one on the right they put in yesterday..
He's still on the vent and they're keeping him comfortable on sedatives..
The GOOD news for today is the doctors now seem to think his left diaphragm is NOT paralyzed, just very weak. With the ventilator breathing "for" him, and inflating his lungs, THAT will move the diaphragm and begin to strengthen it..
He IS getting better, just at HIS own pace!
Thank you for your continued prayers!
He's still on the vent and they're keeping him comfortable on sedatives..
The GOOD news for today is the doctors now seem to think his left diaphragm is NOT paralyzed, just very weak. With the ventilator breathing "for" him, and inflating his lungs, THAT will move the diaphragm and begin to strengthen it..
He IS getting better, just at HIS own pace!
Thank you for your continued prayers!
April 21, 2008 (for real)
I messed up yesterday's date.. I was just a teeny bit tired..
First, I want to say how blessed we continue to be.. God has continued to show Himself in the details, in some seemingly "little" things (that really are BIG things) such as putting people in my path JUST when I need someone to talk to. He continues to encourage and bless us using some of you for that as well so thank you for your faithfulness and listening to His voice.
As you know from yesterday's update, Seth is back on the ventilator. He also had a chest tube re-inserted today as he had fluid building up in his chest cavity again.. Leland and I took turns up at the hospital today..
Other than that, no major changes, the previously mentioned heart arrhythmia tends to pop up every now & then but seems to be better controlled by meds. And in the big picture, Seth does seem to be doing as well as would be expected.
My mom left today. The "big kids" are all doing well. Leland and I are hanging in there. Thank you for your continued prayers!
First, I want to say how blessed we continue to be.. God has continued to show Himself in the details, in some seemingly "little" things (that really are BIG things) such as putting people in my path JUST when I need someone to talk to. He continues to encourage and bless us using some of you for that as well so thank you for your faithfulness and listening to His voice.
As you know from yesterday's update, Seth is back on the ventilator. He also had a chest tube re-inserted today as he had fluid building up in his chest cavity again.. Leland and I took turns up at the hospital today..
Other than that, no major changes, the previously mentioned heart arrhythmia tends to pop up every now & then but seems to be better controlled by meds. And in the big picture, Seth does seem to be doing as well as would be expected.
My mom left today. The "big kids" are all doing well. Leland and I are hanging in there. Thank you for your continued prayers!
Sunday, September 21, 2008
April 21, 2008
I didn't send a Sat. update because Sat. looked a lot like Friday, just a good day.. Both Leland and I spent time at the hospital hanging out w/Seth, holding him, loving on him.. We decided to take ALl the "big kids" up to the hospital Sunday after church so the boys could see Seth again and Kayleigh could "meet" him..
This am, as we headed out the door for church, we got a phone call from the dr in peds ICU that Seth had some difficulty breathing and had been put back on CPAP. We decided to take the kids up anyway after church and had a brief "family" visit. Seth didn't look great to me as he had his head held way back in a position the nurses said they see in patients who are "air hungry".. And apparently he wasn' t doing very well as this afternoon he was re-intubated. The "theory" (or at least how *I* understood it from the doctors) is that he was just tired.. His "respiratory muscles" probably grew tired from working so hard, half of his diaphragm isn't working (due to the paralysis of the left side). His oxygen saturations were good but he wasn't "blowing off" the co2 well enough and his blood gases were poor..
At this point, the drs are figuring out the best step for getting nutrition into him, either an Nd tube (a tube that goes in through his nose and past his stomach) or a G-tube (directly into his stomach). The cardiologist said a "bigger baby" wouldnt have as difficult a time dealing w/the diaphragm stuff (oh, when Seth was last weighed, on Sat eve, he was an even 7lbs). Also, the heart arrythmia is still somewhat problematic and they're trying various meds to control that (we're on medicine #3..)
So, today was one of those "step backward" days the drs warned us about in Seth's recovery..
AND, my mom is leaving tomorrow (sniffle, sob..).
We're hanging in there, we certainly appreciate the prayers for Seth's healing and for his doctors wisdom. Thank you!
This am, as we headed out the door for church, we got a phone call from the dr in peds ICU that Seth had some difficulty breathing and had been put back on CPAP. We decided to take the kids up anyway after church and had a brief "family" visit. Seth didn't look great to me as he had his head held way back in a position the nurses said they see in patients who are "air hungry".. And apparently he wasn' t doing very well as this afternoon he was re-intubated. The "theory" (or at least how *I* understood it from the doctors) is that he was just tired.. His "respiratory muscles" probably grew tired from working so hard, half of his diaphragm isn't working (due to the paralysis of the left side). His oxygen saturations were good but he wasn't "blowing off" the co2 well enough and his blood gases were poor..
At this point, the drs are figuring out the best step for getting nutrition into him, either an Nd tube (a tube that goes in through his nose and past his stomach) or a G-tube (directly into his stomach). The cardiologist said a "bigger baby" wouldnt have as difficult a time dealing w/the diaphragm stuff (oh, when Seth was last weighed, on Sat eve, he was an even 7lbs). Also, the heart arrythmia is still somewhat problematic and they're trying various meds to control that (we're on medicine #3..)
So, today was one of those "step backward" days the drs warned us about in Seth's recovery..
AND, my mom is leaving tomorrow (sniffle, sob..).
We're hanging in there, we certainly appreciate the prayers for Seth's healing and for his doctors wisdom. Thank you!
April 18, 2008
Pictures are inserted (above) And attached.
The top picture is from yesterday, when Seth was off vent, before CPAP. The bottom picture is from today.
And yes, Today was An AWESOME, we're singing God's praises day! That is me HOLDING Seth for the first time in 16 days!!
He had a GREAT day. He's off the vent and CPAP, on a nasal cannula. They pulled one of the chest tubes because it had slipped out of position anyway.. (May end up re-inserting it tomorrow).. The IV line in his umbilical cord area came out today. The drs are holding feeds to make sure he's doing okay with his breathing (he's getting IV nutrition). And, he goes to town on his pacifier!
We're praising God for the good work being done over here. AS much as he loves his "binky", I"m praying that we'll be able to breastfeed as I don't think latching on will be a problem!
And that's it for today, it was a gREAT day!!
The top picture is from yesterday, when Seth was off vent, before CPAP. The bottom picture is from today.
And yes, Today was An AWESOME, we're singing God's praises day! That is me HOLDING Seth for the first time in 16 days!!
He had a GREAT day. He's off the vent and CPAP, on a nasal cannula. They pulled one of the chest tubes because it had slipped out of position anyway.. (May end up re-inserting it tomorrow).. The IV line in his umbilical cord area came out today. The drs are holding feeds to make sure he's doing okay with his breathing (he's getting IV nutrition). And, he goes to town on his pacifier!
We're praising God for the good work being done over here. AS much as he loves his "binky", I"m praying that we'll be able to breastfeed as I don't think latching on will be a problem!
And that's it for today, it was a gREAT day!!
April 17, 2008
The top picture is from yesterday, when Seth was off vent, before CPAP. The bottom picture is from today.
And yes, Today was An AWESOME, we're singing God's praises day! That is me HOLDING Seth for the first time in 16 days!!
He had a GREAT day. He's off the vent and CPAP, on a nasal cannula. They pulled one of the chest tubes because it had slipped out of position anyway.. (May end up re-inserting it tomorrow).. The IV line in his umbilical cord area came out today. The drs are holding feeds to make sure he's doing okay with his breathing (he's getting IV nutrition). And, he goes to town on his pacifier!
We're praising God for the good work being done over here. AS much as he loves his "binky", I"m praying that we'll be able to breastfeed as I don't think latching on will be a problem!
And that's it for today, it was a gREAT day!!
April 16, 2008
I know I said I wasn't going to send out daily updates BUT today was too good of a day to NOT share & praise God!!
As of 10:00 this am, Seth is OFF the ventilator!! Yippee!!! We didn't get to hold him as he was still having some minor difficulties and they put him on a nasal c-pap machine (big head gear type thing.. on the vent we could really only see above his nose well, now we've got a good view of his lips!). He was holding his own on that, making little squeaky baby noises.. :)
Also, today, they discontinued the valium, the heart arrythmia is well-controlled w/the medication, and for pain, etc. he's ONLY getting tylenol!!
God is so good, it really feels like we've come a long way in the last two weeks. Yay!!
So there we go!.. MAYBE I won't pester you with an update tomorrow (and maybe I will)
Thank you for your prayers!
As of 10:00 this am, Seth is OFF the ventilator!! Yippee!!! We didn't get to hold him as he was still having some minor difficulties and they put him on a nasal c-pap machine (big head gear type thing.. on the vent we could really only see above his nose well, now we've got a good view of his lips!
Also, today, they discontinued the valium, the heart arrythmia is well-controlled w/the medication, and for pain, etc. he's ONLY getting tylenol!!
God is so good, it really feels like we've come a long way in the last two weeks. Yay!!
So there we go!.. MAYBE I won't pester you with an update tomorrow (and maybe I will
Thank you for your prayers!
April 14, 2008
Yay, and Praise God! Today was a GOOD day... Seth was calm & mellow today (I'd give the valium the credit but I think the dose they were giving him is small enough that he really WAS just mellow!)..
The previously mentioned heart arrythmia is under control with medication. The drs are back to trying to wean Seth off the ventilator. Keep praying for those little lungs, once he's off the vent. we can hold him again!!
So we're staying the course! Thank you for all the prayers and support.
The previously mentioned heart arrythmia is under control with medication. The drs are back to trying to wean Seth off the ventilator. Keep praying for those little lungs, once he's off the vent. we can hold him again!!
So we're staying the course! Thank you for all the prayers and support.
April 12, 2008
Oops, almost missed another one
Saturday was another "backwards step" day. Friday the cardiologist mentioned that Seth has a bit of an arrythmia (rapid heart beat). They were just keeping an eye on it. On Saturday, the arrythmia had been occurring more over the last 24 hour period and so Seth is now on a medication to treat that (and as of the last report Sat. night, I'm not sure the medication was helping all that much :( )
Also, Seth was extubated at 9:15 Sat. am. Unfortunately, by the time I got to the hospital at 11am, he was being re-intubated. He had VERY labored breathing and really struggled off the ventilator. The drs don't think it's heart function but rather a lung issue. I"m fuzzy on understanding (as I was reacting emotionallay and probably only heard half of what the dr said) but it seems to be considered to be a "small airway obstruction" possibly his lungs are slightly under-developed, etc. I"m going to try and get more details today or tomorrow on that and if we need to just wait out or what..
In addition to all that, Seth is having some withdrawal symptoms from all the pain meds & sedatives he's been on after surgery.. They've changed some meds to try and help with that..
Thank you for prayers. We just keep trusting that God is doing a mighty work here and His name will be glorified through all this.
Saturday was another "backwards step" day. Friday the cardiologist mentioned that Seth has a bit of an arrythmia (rapid heart beat). They were just keeping an eye on it. On Saturday, the arrythmia had been occurring more over the last 24 hour period and so Seth is now on a medication to treat that (and as of the last report Sat. night, I'm not sure the medication was helping all that much :( )
Also, Seth was extubated at 9:15 Sat. am. Unfortunately, by the time I got to the hospital at 11am, he was being re-intubated. He had VERY labored breathing and really struggled off the ventilator. The drs don't think it's heart function but rather a lung issue. I"m fuzzy on understanding (as I was reacting emotionallay and probably only heard half of what the dr said) but it seems to be considered to be a "small airway obstruction" possibly his lungs are slightly under-developed, etc. I"m going to try and get more details today or tomorrow on that and if we need to just wait out or what..
In addition to all that, Seth is having some withdrawal symptoms from all the pain meds & sedatives he's been on after surgery.. They've changed some meds to try and help with that..
Thank you for prayers. We just keep trusting that God is doing a mighty work here and His name will be glorified through all this.
April 11, 2008
Oops, got tired & distracted and forgot to send this out last night!
Friday was more of the same. They're getting a teeny bit more aggressive weaning Seth off the ventilator and the pediatric intensivist (PICU dr) said he'd get him off it by Saturday.. We'll see.
Seth has several different IV lines, PIC line, etc. He had a chest line but Friday it developed a crack right at the hub and was leaking all over so that got pulled Friday afternoon. So that's ONE thing out!
They changed antibiotics as a test came back showing what MIGHT be signs of infection...
And I think that's all our news! So, we continue in baby steps (which is appropriate really, if you think about it) and we're moving Forward so at least we're making progress!!
Friday was more of the same. They're getting a teeny bit more aggressive weaning Seth off the ventilator and the pediatric intensivist (PICU dr) said he'd get him off it by Saturday.. We'll see.
Seth has several different IV lines, PIC line, etc. He had a chest line but Friday it developed a crack right at the hub and was leaking all over so that got pulled Friday afternoon. So that's ONE thing out!
They changed antibiotics as a test came back showing what MIGHT be signs of infection...
And I think that's all our news! So, we continue in baby steps (which is appropriate really, if you think about it
April 10, 2008
Happy Birthday baby Brother!
I would probably not send this out today except that so many people tell me how much they appreciate getting them, I"m a little afraid I"d be deluged w/complaints if I missed a day!
Today actually looked much like yesterday.. The cardiologist came in and said "welll, your son will NOT be pushed." And the surgeon said he was going to move at his own pace, which appears to be: "Slow, slower, slowest". ha ha. Actually, they are trying to wean Seth off the ventilator TONIGHT but when I spoke to his nurse a few minutes ago, it didn't sound like it was going off w/out a hitch. I can update on THAT tomorrow!
THey have cut back on some ofhis meds quite a bit, he does seem to be experiencing some withdrawal symptoms from the various sedatives & pain killers he was on post op. Please pray for that to resolve quickly.
All in all, not a ton of new stuff.. The drs say he is getting better and we just stay the course. thank you!
I would probably not send this out today except that so many people tell me how much they appreciate getting them, I"m a little afraid I"d be deluged w/complaints if I missed a day!
Today actually looked much like yesterday.. The cardiologist came in and said "welll, your son will NOT be pushed." And the surgeon said he was going to move at his own pace, which appears to be: "Slow, slower, slowest". ha ha. Actually, they are trying to wean Seth off the ventilator TONIGHT but when I spoke to his nurse a few minutes ago, it didn't sound like it was going off w/out a hitch. I can update on THAT tomorrow!
THey have cut back on some ofhis meds quite a bit, he does seem to be experiencing some withdrawal symptoms from the various sedatives & pain killers he was on post op. Please pray for that to resolve quickly.
All in all, not a ton of new stuff.. The drs say he is getting better and we just stay the course. thank you!
April 9, 2008
It's so weird to think about the fact that tomorrow (the 10th) was Seth's due date! He's been through so much already for just turning 2 weeks old, sweet guy.
Today was an okay day. Seth got transfusions. The increased blood volume helps w/oxygen, etc. He looks pinker today. Also, he was getting sedated again.. He was a "little rowdy" and trying to pull out stuff, he has a "neighbor" now (little girl in the room next door, separated by a curtain) and when she cries it visibly upsets him.. All in all though, not doing badly, they were attempting weaning him off the ventilator (again, still!) and we'll see tomorrow how that went!
Leland went back to work today and I know that's hard for him so as you feel led, please lift him up in prayer!
God continues to shower us with blessings, big & small so we know how well we're being taken care of by our Creator!
Today was an okay day. Seth got transfusions. The increased blood volume helps w/oxygen, etc. He looks pinker today. Also, he was getting sedated again.. He was a "little rowdy" and trying to pull out stuff, he has a "neighbor" now (little girl in the room next door, separated by a curtain) and when she cries it visibly upsets him.. All in all though, not doing badly, they were attempting weaning him off the ventilator (again, still!) and we'll see tomorrow how that went!
Leland went back to work today and I know that's hard for him so as you feel led, please lift him up in prayer!
God continues to shower us with blessings, big & small so we know how well we're being taken care of by our Creator!
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