Monday, September 22, 2008

May 8, 2008 - am

Seth is doing SO well!! The only issue remaining is eating.. We're working on it with Speech & occupational therapists but Seth is only taking millileters at a time (the best he's done so far in one feeding, about a half hour, is 8 ml, he gets 60 mls through his Ng tube every 3 hours). The drs have decided that he probably needs a feeding tube "long term", we'll still working on eating by mouth but his main nutrition will be through the tube. Due to that, Seth is getting a g-tube. This is a feeding tube surgically implanted directly into his stomach (the surgeon described it as a "gas cap" in his belly ). To prepare for that Seth will have an upper GI Study today (Thursday) and most likely the G-tube surgery will be tomorrow..

The surgery will require general anesthesia and so Seth will be placed back on a ventilator but we expect that to be VERY short lived! I"ll send an update tonight when I know what time surgery is tomorrow.

Thank you for your continued prayers for our sweet baby! Oh yeah, moving forward with this g-tube means that Seth will be home SOON! We don't have a date yet but I'm thinking sometime next week!! Yay!! I'll keep you posted.

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