I guess no news is good news..
Seth is the same. He's on a very large amount of sedation but we do seem to have finally controlled the rigidity and posturing. He's such a sweet beautiful baby, looking at him it's hard to believe he's so broken inside...
We took a "field trip" yesterday and with our nurse and oxygen tank, took Seth out to the Healing Garden here on the SHMC campus. It was beautiful. Leland and I both cherish the time we spend right now, holding, loving on and praying for our sweet boy.
We appreciate all of you lifting us up and want you to know that we do feel those prayers and know we are surrounded by love.
Waiting on the Lord,
Kathryn
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7 comments:
Kathryn,
I found your blog through the Hope for HLHS message board. I just want you to know I am praying for Seth and you and your family. You are showing such amazing faith through all of this. I pray that God will continue to comfort and sustain you.
-Jenn (Mom to Charlotte with hlhs)
Kathryn,
I am glad I found your blog:) I like to follow the thoughts of people who have so much faith and you and Leland are a prime example.
My prayers are with you two, Seth and the children every day. Seth muct be a very special child of God to go through so much as such a very tender age.
My sister wrote a poem one day and I had put it to music. It was called "The Little Angle God So Loved." I thought of Seth the other day and thought of that poem. That is how I see Seth-the little angel God so loved.
For some reason this has happened to you, Leland, Seth and the kids. You may never know while here, but I sense part is the strength, faith and courage God is giving you all and you are showing the rest of us-even though the decision could not have been easy you and Leland made about Seth, you did the right thing and with the Lord's help. All things are possible through Him, but I am still praying for a miracle because He is in control.
Keep the faith my sister in Christ and know you are deeply loved by our Lord.
Blessing to you all.
Jean
Continuing to pray for you and Seth, as well as the rest of the family. Expecting a miracle from God!!
Heart hugs,
Millie and Colin-HLHS
cutiecolin.blogspot.com
I was so blessed to have spent time with you on Wed. To hold Seth was a beautiful thing in middle of the sadness. You are in our prayers and I want to thank both of you for teaching the rest of us what it means to keep your eyes on God. I love you Kim
So I know I already commented, but every time I hear this song (I'm a major music fan), I think of you guys. Especially the chorus. I wish I could send the song for you to listen to and read the words along, but don't think it would work, so here are the lyrics. It's from Jeremy Camp's new album, releasing in Nov. At times when you feel the worst...remember, "there will be a day"...
Here's the lyrics...
I try to hold on to this world with everything I have
But I feel the weight of what it brings, and the hurt that trys to grab
The many trials that seem to never end, His word declares this truth,
that we will enter in this rest with wonders anew
But I hold on to this hope and the promise that He brings
That there will be a place with no more suffering
(Chorus)
There will be a day with no more tears, no more pain, and no more fears
There will be a day when the burdens of this place, will be no more, we'll see Jesus face to face
But until that day, we'll hold on to you always
I know the journey seems so long
You feel you’re walking on your own
But there has never been a step
Where you’ve walked out all alone
(Chorus)
Troubled soul don’t lose your heart
Cause joy and peace he brings
And the beauty that’s in store
Outweighs the hurt of life’s sting
I can’t wait until that day where the very one I’ve lived for always will wipe away the sorrow that I’ve faced
To touch the scars that rescued me from a life of shame and misery this is why this is why I sing
Thank you. I love how honest you were when I called today. I am so glad you are strong enough to say it is not a good time.
I just want you to know I love you and I am thankful you are in my life. I am going to be gone part of the weekend but if anything comes up next week that you need help with please let me know.
My prayer for you today is that you'll climb right up into God's lap (Both of you) and then close your eyes and rest in his gentle and loving arms. I pray you find comfort in him tonight and that you both get some good sleep so that your bodies will be renewed in the morning.
Love you Kim
Kathryn,
I don't see you anymore (which I miss) but I am praying for you and your family. I know you treasure every breath and every hug for your little boy just as God treasures you and your whole family.
Hugs and Love
Wendy Sinclair
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